It said my name.  Clearly.  I could discern it and understand it and turn toward its direction.  At first, it was a nuisance.  I did not realize what was happening.  Too busy to notice.  Playing loose and fast with reality, as though it would always be there.  Twice I asked, “who keeps calling my name?”  Stares. Laughter. I didn't ask again.

The tinnitus is maddening.  I have tried everything.  It has become so loud that I cannot hear.  Worse in the evenings.  Sometimes, it is the only thing.  Period.  The only thing.  My entire existence is a constant high-pitched sound eating at my brain. 

Then my eyes started making fun of me.  Kaleidoscope eyes.  They are so dark that if you see them in the right amount of shade, they look like anime girl doe-eyes. Big.  Round. Black.  And now. They hate me.

I don’t do well with patterns.  Any kind of patterns, but especially busy ones.  They move, zooming in and out, in and out, in and out.  It is as though my eyes are telescopes, not necessarily focusing as much as making things bigger and smaller really, really fast.  Over and over until I have to turn away.  I have asked other people if they see the same things.  Only once I asked.   I have tried looking online, looking to see if it has a name, if other people have this problem.  Nope.  Nothing.  Pages and pages full of optical illusions and hallucinations and none of them reproduce what I see. 

Of course I know the first reaction.  Go to the doctor.  Go to the doctor.  Go to the doctor.  And tell him what?  I am hearing voices?  I am seeing things that are not there? 

The tinnitus is incurable.  The other two things will guarantee me a first-class suite at the schizo farm.

Sometimes, it is so loud it makes my ears hurt.  My eyes make my head hurt.  And my name has become the enemy. 

Views: 34

Tags: hallucinations, tinnitus

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Comment by Joe Scott on February 23, 2013 at 4:03pm

Having just started down the tinnitus trail, I can attest to the accuracy of your descriptions.  Mine isn't even that bad, yet. 

Your post is so vividly-written - and succinct - that it fills me with dread and covers me in goose bumps.

Comment by Vicky Willenberg on February 18, 2013 at 11:21pm

Good grief this sounds terrible.  I get the kaleidoscope thing right before I get a migraine.  But that's only a few times a year.  It's so distracting, maddening.  It starts asthe kaleidoscope and then slowly but surely my vision disappears from my periphery, heading inward.  I couldn't imagine it being constant.  I'm so sorry for you.  You know your body.  You know when something is wrong.  You are not schizo. If someone says you are, find someone else.  Keep finding until someone listens.  You deserve to not feel terrible.

Vicky

Comment by Katy Brandes on February 18, 2013 at 4:41pm

Is it worse with certain types of lighting?  Oh, my ... I'm with you on this!  The only way I've been able to rid myself of the high-pitched squeal in my head (beyond sleep) is yoga, and that's only two hours a week.  Can't do it all the time, though.  

Some people say there are certain herbs to help, but I've never found them.  I feel for you and hope you find some relief.  

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